Welcome to the Community Sickle Cell Support Group web-site. Now that you have logged on, we invite you to take your interest in sickle cell disease to another level by becoming a member of our Community Sickle Cell Support Group.
The Community Sickle Cell Support Group, Inc (CSCSG), is a 501(c) 3, nonprofit organization, which advocates and provides life enhancing support services to all sickle cell patients living in the Greater Boston Region.
The organization was founded in 1995 by Reverend Ronald Stephenson, who was moved to do something about the lack of sickle cell awareness and support services for families effected by the Sickle Cell Disease (SCD) in our region. His motivation to form the group was kindled by the comments of an acutely ill patient with SCD, who complained to him that the biggest problem for most sickle cell patients is that “no one seemed to care.”
CSCSG was formed with the participation of a small group of patients, their
family members, health care workers at Brigham & Women's Hospital, and
The vision was to provide support services for all patients with SCD in our region.
the organization is at the forefront of sickle cell awareness in the Greater
Boston Region, and provides a list of essential support services to patients
with SCD from Brigham & Women’s Hospital,
Board of Directors
Rev. Ronald Stephenson, M. Div.
Jacqueline Rodriguez -Louis, MPH, M.Ed.
Lillethe Jarrett, M.Ed.
Kenneth Bridges, M.D.
AnnMarie Holder, JD
Anne Onogiogu, Ed.D, MPH, RN
Suzette Oyeku, M.D.
David Holder, M.D.
Capt. Nichole King-Campbell
Tamikha Cantave, M.A.T.